Rai had her surgery

March 13, 2009 at 3:05 am | Posted in life | Leave a comment
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The whole family was up early and left for the hospital at 7:15 A.M. We had Rai checked in on time and they took back to get all the pre-op stuff done at 8:30. Dave and I switched off so Rai would have the full attention of one of us and the other two could spend time in places they could make noise.

Since this isn’t a brain surgery, I was allowed into the OR until she was alseep. I had to wear an oddly spaceman like white paper jumpsuit, shower cap and a mask. The anesthesiologist put the mask on her and I held her hand as she drifted off quickly but peacefully. I liked it so much better than the IV stuff when they scream and cry because it burns going in and the abruptly cut off mid cry. I am guess she did too since there was no pain involved…at least at that point.

I rejoined Dave, Mira and Laura. We took our pager and went upstairs to wait. The clinic waiting room is an incredible playroom. The girls have become quite enamored of air hockey table and the requests are already pouring in from them. About an hour later, we were paged to return. Rai was doing great and just about out of surgery. We waited for about 15 more minutes in surgery waiting room. Dave went in first and I took the other two down for lunch.  When I came back we switched again.

Rai was still groggy and clearly in a lot of pain. I had them give her some Tylenol with codeine. When that took effect, she drifted off peacefully for a bit. When she woke up, she was ready to go. Her eyes were a bit happier and she was even trying to chat. I got her dressed, signed the obligatory papers and got the heck out of dodge!

The only snafu of the day was getting her scripts filled. The nurse said she called them in but it became apparent that it wasn’t to our pharmacy. When Dave went to pick them up, our pharmacy had no clue. They called another one nearby in case the nurse confused the two. Nope..not there either. The pharmacist called neurosurgery and managed to get new scripts faxed over just in time. Rai is the kind of kid that you can’t let the pain get ahead for the first two days. Otherwise, we will never catch back up and she will be miserable. We got the next dose into her just as the first one was beginning to wear off. Whew!

She is in bed and sound asleep. Dave is upstairs giving her the next dose right now-yay g-tube! Hopefull she will get a good night’s rest.

The Cousin Eddie

March 8, 2009 at 6:27 am | Posted in life | 3 Comments
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So Dave and I decided that we should name Rai’s upcoming surgery. He came up with the Cousin Eddie from the various National Lampoon’s Vacations because of the plate in his head that ultimately had to be replaced. Shows how much I paid attention after the first movie since I only have a vague idea of what he is talking about though I know who Cousin Eddie is.

I came up with the Sucky Sixth since this will be Rai’s 6th surgery. I think I like Dave’s better because it adds a bit of twisted humor and my idea is simply, well, sucky and depressing.

After seeing the neurosurgeon this morning, we know for sure that Rai will be having surgery  this week to remove the plate on her head that is starting to come through her skin. Because she is on an antibiotic, along now with a prescription antibiotic ointment, it can wait unless things get worse. They will be calling us on Monday to schedule a CT scan and the surgery.

If things go as planned it should be an outpatient surgery depending on the CT scan. In the whole scheme of things, it is actually kind of minor. Major=taking out half a brain. Minor=not even going through the skull. Clearly these definitions are relative based on our experiences.

I would really appreciate if people would pray or send positive thoughts our way. Surgery is surgery and Rai will still have rough time. I am pretty sure she doesn’t agree with our definition of relative.

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